tag:blogger.com,1999:blog-12602489.post114298264193566061..comments2024-03-24T15:07:18.773+01:00Comments on The Stuttering Brain: Anti-pagocloneTom Weidighttp://www.blogger.com/profile/02084153394215001999noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-12602489.post-9219040980827427912011-03-29T21:59:49.930+02:002011-03-29T21:59:49.930+02:00Hello to everyone,
I haven't posted here in ...Hello to everyone, <br /><br />I haven't posted here in a while. I am no longer in the pagoclone study, and I believe the study is over. I stayed throughout all of it, but decided to stop using the medication when I received a call to tell me that the trials will be stopped due to poor results. As for me, I didn't think that the medication helped me at all, and maybe the dose that they were giving us was too low, but I guess we'll never know. Hopefully something else is brewing out there that will help stutterers in the near future. <br /><br />Best regards, stay positive!Anonymoushttps://www.blogger.com/profile/10238088964040980199noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-12783208070225884122010-12-19T20:09:48.264+01:002010-12-19T20:09:48.264+01:00hello to everybody i m from turkiye
and waiting fo...hello to everybody i m from turkiye<br />and waiting for pagoclone last hope :(( have you any information for pagoclone and what is the side effect of pagoclone <br />thx for everyhing... xanadu_756@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-83823502105452720762010-11-08T06:51:54.590+01:002010-11-08T06:51:54.590+01:00October 22 2009 seems to be the last comment poste...October 22 2009 seems to be the last comment posted regarding pagoclone and it's clinical trial. Does anyone know the final results of the trial and if its still ongoing or not? I am 34 years old and have stuttered my entire life. If anyone can guide me to the location of this drug, I would be very grateful. etshaw25@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-8592754775791083172009-11-01T05:40:28.976+01:002009-11-01T05:40:28.976+01:00Thanks for the update KaboulThanks for the update KaboulAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-88271656388235029472009-10-22T09:04:05.026+02:002009-10-22T09:04:05.026+02:00Yes the drug is still in trial. I am currently in ...Yes the drug is still in trial. I am currently in the final 2 months of the current trials, and there is a possibility that they will make another trial period before they bring pagoclone out on the market or not. That all depends on the FDA. I will begin the open label phase in the month of December and will be given the real medication until it comes out on the market (there is a big chance that I am on placebo right now as I haven`t noticed any changes in my speech and no side effects at all).<br /><br />I will keep you guys updated on the results I am getting on the real meds and I will let you know if I have any information if there will be another trial period so you guys can sign up. From what I`ve heard from others in the trials, the results look really promising and some call it even life changing, so I doubt that the meds will be discontinued, and I expect them to come out on the market hopefully during 2010-2011.Kaboulhttps://www.blogger.com/profile/03144243111108520933noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-86668162621940817742009-08-28T04:22:35.966+02:002009-08-28T04:22:35.966+02:00Is ths drug available, or is it still in trial?Is ths drug available, or is it still in trial?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-5860756938418254942009-06-20T15:22:34.625+02:002009-06-20T15:22:34.625+02:00Hello!
Pagoclone medicine Hungary distributes alre...Hello!<br />Pagoclone medicine Hungary distributes already?<br />I was enquiring in a pharmacy nállunk, it is not known yet.<br />Please write it in email, that, how I can obtain it?<br />Best regards: dosabelane@freemail.huAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-349642241618821892009-05-02T00:07:00.000+02:002009-05-02T00:07:00.000+02:00I am on week 2 of the drug trial, the first week I...I am on week 2 of the drug trial, the first week I noticed mild headache and being somewhat tired, but that has gone away. I've noticed an expanded awareness so far, kinda like thoughts flow easier and speaking feels easier. It's still early days, I'll keep you updated.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-27509893313034046782009-04-16T19:53:00.000+02:002009-04-16T19:53:00.000+02:00I'm living in france how can i test the pagoclone ...I'm living in france how can i test the pagoclone ? <br /><br />Please inform me tooAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-39907462101949112232008-11-24T06:03:00.000+01:002008-11-24T06:03:00.000+01:00Hi.I am very pleased to know that a miracle drug h...Hi.<BR/>I am very pleased to know that a miracle drug have been arrived for the Stammerer's. I too facing this problem from the last 18 years.<BR/>I just want to know that , is this Medicine (Pagoclone) is available in India?<BR/>Please inform me to my mail<BR/>utkarshtewary@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-48293891356517204692008-11-20T18:06:00.000+01:002008-11-20T18:06:00.000+01:00Hey, my name is Lance Lambert, im 21 and in the U....Hey, my name is Lance Lambert, im 21 and in the U.S Army. I am actually in Iraq right now. I am NOT taking the drug, but have read about it and cant wait to give it a shot. I have tried alot of thing, but nothing works. If this does work it would really change my life. If anyone reading this has tried it or know someone who has please let me know how it worked or didnt work for you.. my email address is lancelambert@hotmail.com or anyone can myspace me, just search for the email address.. I would very much appriciate any help with getting to learn about it, and even trying it for trials or anything like that. ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-58185283784252962872008-10-30T04:19:00.000+01:002008-10-30T04:19:00.000+01:00wow finally the miracle drug for us stutterers. ca...wow finally the miracle drug for us stutterers. cant wait til its available the trials look really promising.<BR/><BR/>As for olanzapine, I would not recommend this. I tried it once and blacked out and saw rainbow stars like a normal stand up too fast thing, but much more intense and lasted around 10mins.<BR/><BR/>-very very scary and i would never try again<BR/><BR/>I have tried quetiapine (seroquel) which is a similar but less strong drug. its effects were not unpleasant like zyprexa but only mildly helpful with my stutter, similar to any sedativeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-32162786452316953672008-02-21T16:51:00.000+01:002008-02-21T16:51:00.000+01:00Hi,Very informative thread, thanks to all posters....Hi,<BR/><BR/>Very informative thread, thanks to all posters. Has anyone used olanzapine (Zyprexa) to treat stammering? I have heard it mentioned before on other websites, any more info from here would be greatPhil McConnhttps://www.blogger.com/profile/08685967385175642528noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-79066551759533906682007-10-09T00:10:00.000+02:002007-10-09T00:10:00.000+02:00For everyone inquiring about how to get Pagoclone ...For everyone inquiring about how to get Pagoclone - you can't. It's currently in clinical trials and, if all goes well, should be available to the public in ~2010.davehttps://www.blogger.com/profile/14532404733270225666noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-18893863528531997822007-08-17T16:33:00.000+02:002007-08-17T16:33:00.000+02:00I want to know more about this and want to know is...I want to know more about this and want to know is how to get a prescription. Please tell me more about this.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-48335205722915984942007-08-06T02:48:00.000+02:002007-08-06T02:48:00.000+02:00I can't believe there is finally a possible cure o...I can't believe there is finally a possible cure or help for this kind of stuttering. I am 56 years old and the hardest thing for me to say was my name when asked.I thought I was the only one with this problem. When I was younger my father wouldn't accept the fact that if I could talk good some times I should be able to talk good all the time. What a relife to know there are other people out there with the same problem. I would love to see this drug available. Any help in getting this would be most greatful. I am much better than I used to be but the PHONE was the biggesst panic attack of all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-14620124191022471922007-02-17T14:17:00.000+01:002007-02-17T14:17:00.000+01:00Thanks a lot to everyone for sharing their experie...Thanks a lot to everyone for sharing their experience with pagoclone. Can anyone help me - where I can purchase pagoclone in South Africa. Or where one can buy it in USA - my friend is in USA at the moment and I can ask him.<BR/><BR/>Thanks<BR/><BR/>Sofiarussian-womanhttps://www.blogger.com/profile/06567896809149387121noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-74819531317390091392007-01-19T03:03:00.000+01:002007-01-19T03:03:00.000+01:00My son age 16 has tried everything including the S...My son age 16 has tried everything including the Speech Easy ear device to control his stuttering. Being in High School he is stressed alot and the stuttering makes it wors-interfereing in his social life and confidence. I am hoping that when this drug comes available he would be of age to try it. What are the long term side effects? He is quite hormonal at this age-so maybe the calming effect will help his up and down personality. I'm sure he has a chip on his shoulder due to his stuttering since his younger brother and sister are quite fluent. I feel he resents them, and therefore treats them badly. We need help to conquer this problem for him and get him to start living and enjoying his life. You're only young once and this hasn't been an enjoyable experience for him.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-2922734941716840322006-09-26T05:53:00.000+02:002006-09-26T05:53:00.000+02:00All this information if very encouraging. I have f...All this information if very encouraging. I have for years thought that there would never be a cure and that I needed to live with this demon. But I see that will not be the case. Are there any other trials coming? does anyone knows? gabbiano7070@hotmail.com<br />Thank youAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-91615977040466687512006-09-17T02:43:00.000+02:002006-09-17T02:43:00.000+02:00I too would like to know how to get pagoclone........I too would like to know how to get pagoclone.....where is it available....Oneof16https://www.blogger.com/profile/14141876647341349781noreply@blogger.comtag:blogger.com,1999:blog-12602489.post-1150261310355152502006-06-14T07:01:00.000+02:002006-06-14T07:01:00.000+02:00I am living in Vancouver BC Canada, I have heared ...I am living in Vancouver BC Canada, I have heared a lot about Pagoclone. I want to try it. Is it availbale in market? If yes then from where I can purchase it in Canada. If not then when it will be available. Can anyone tell me?<BR/>ThanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-1147101150303944712006-05-08T17:12:00.000+02:002006-05-08T17:12:00.000+02:00I've been on it for a little over three months now...I've been on it for a little over three months now and have noticed significant improvement in my speech. I used to get blocked on the phone with my name, but am able to 'plow' through much more quickly. I still have espisodes, but they're much smaller. I find myself relaxing more and breathing more before I get ready to talk. I am remembering to do things like relax and drop my shoulders. My confidence is also growing, which is fantastic.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-1144793001106628132006-04-12T00:03:00.000+02:002006-04-12T00:03:00.000+02:00This is all exciting information for the rest of u...This is all exciting information for the rest of us waiting on the results of pagoclone. I was supposed to be part of the study but when I showed up the day of my appointment, the office said that the study closed the day before. Can't wait to hear more information this summer from Indevus.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-1144627036974935912006-04-10T01:57:00.000+02:002006-04-10T01:57:00.000+02:00I am currently six weeks in the trial, phase II. I...I am currently six weeks in the trial, phase II. I have noticed much less blocking in my speech. I have noticed that my stuttering has not gone away but it is much less frequent. While I am in a block, the stress involved is much less. This is probably due to the anti-anxiety properties of Pagoclone. The side effects are minimal.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-12602489.post-1143993281130801832006-04-02T17:54:00.000+02:002006-04-02T17:54:00.000+02:00I have been on Pagoclone for a couple of months, a...I have been on Pagoclone for a couple of months, and have noticed improvement that began within the first few days and has continued. Family and Colleagues have commented that I am significantly more fluent.<BR/>Before, I was having difficulty and was uncomfortable is most speaking situations. Now I am comfortable and probably 95% fluent in dinner conversations, work sessions, and the normal speaking situations that come up in everyday life. <BR/>When I do have a block, it seems to be on certain words like my name. These blocks are easier than they were before.<BR/>As far as side effects, I think I am noticing a general sense of calm that was not there before.Anonymousnoreply@blogger.com